Schinzel-Giedion Syndrome

This website is designed to provide you with information and links concerning Schinzel-Giedion Syndrome (SGS), a rare genetic disorder in infants. SGS is devastating to families and we hope that this website will provide help to those families searching for answers.

Dear family member of a child with Schinzel-Giedion syndrome,
I want to let everyone know of a good research opportunity! Dr. Bert DeVries and Dr. Han Brunner at Nijmegen University in the Netherlands are trying to find the gene that is responsible for SGS. Please contact Dr. DeVries to get more information on how to participate. His e-mail address is here. He can give you more information about what he needs to do his study. Include "Schinzel-Giedion Syndrome Research" in the subject line of your message.
Thank you, to everyone who is willing to participate!

I invite parents of children with SGS to send your photographs. I will post pictures of these children on this website as a memorial to your beloved little ones. If you would like to send a picture, please send me a message on my message form. Be sure to include your e-mail address. You can view the pictures in my photo gallery.

This website is under construction. Please bookmark us and visit us again later to find more information and links on SGS.

THE FINE PRINT: I am not a physician and I do NOT offer any medical advice. I am offering only to share information that I have learned in the course of my family’s experience with SGS. You should always consult a physician for medical advice concerning health problems.

Website design by Dan Short.